ALS sufferer Bjorn Formosa has said that his future, whatever decision he will be making, will be “short” and “difficult”, but he wants to continue to live as long as he can.

For the past months Bjorn Formosa has been in the news as he fights against a debilitating disease, raising awareness on the condition which is slowly eating away at his life.

He writes on Facebook, along with a picture (above) showing him wearing an oxygen mask that is helping him to breathe:

“Which way shall we go now?

Sometimes we arrive at a crossroad in our lives where we are presented with 2 possibilities, one worse than the other and you are required to choose one of them.

That is where I find myself now. Unfortunately every hospital visit gives me a deep insight into my unfortunate ALS reality. My breathing keeps going down relentlessly quicker than expected. 

I'm faced with these 2 choices.

OPTION 1: I stick a pipe inside my neck, undergoing surgery, losing my ability to eat, speak and drink and ending up in a locked in state and if everything goes well maybe getting a shot at a few more months or a year or 2 if I get lucky.

OPTION 2: Let it be and live my remaining days in peace but my days will be counted, maybe a few more weeks or couple of months.

Even though OPTION 1 presents itself as very though, taking me almost everything I am, it's the only chance that can prolong my life. I can't imagine myself without life. I want to LIVE. I still want to say I have tried it all before succumbing even in this difficult way. I can never give up doing what I started. 

Future whichever will be, will be short, difficult, though but this is the only LIFE I know and I want to continue living it as long as I can!”

Amyotrophic Lateral Sclerosis (ALS), also commonly known as Lou Gehrig’s Disease, is a progressive neurodegenerative disease that causes muscle weakness, paralysis, and ultimately, respiratory failure.