Epilepsy doesn't define you. If you're among the fortunate 70% of people whose seizures are controlled with medication, you can still lead a successful, fulfilling life. My story is a testament to this truth - one of resilience, hope and a determination to overcome the challenges of living with epilepsy.

The beginning of the journey

At the age of 12, my life changed in an instant. I was watching a football match, celebrating Ronaldo El Fenomeno's stunning goal, when suddenly, an indescribable sensation overcame me. It was a fast déjà vu followed by a loss of control over my body resulting in a seizure. That day, I learned I was epileptic. At the time, I didn't even know what epilepsy was, let alone how it would shape my future.

From that moment on, life became a rollercoaster. Seizures disrupted my teenage years, adding to the usual struggles of growing up. Despite these challenges, I pursued my education relentlessly. I graduated from university, even though the journey was punctuated with medical hurdles and the emotional toll of managing epilepsy.

Navigating life with epilepsy

Finding the right medication was a difficult process. Sodium valproate eventually helped control my seizures, but it came with side-effects like weight gain and mood changes. The physical and emotional strain was often overwhelming, and keeping a smile on my face sometimes felt like a mask.

Talking about my condition was equally challenging. Explaining my seizures or reactions to medication to friends, teachers or colleagues felt like revealing a vulnerable part of myself. Relationships often faltered when people couldn't handle the reality of my condition, leaving me feeling isolated.

Social situations were no easier. As a teenager, I tried to fit in by joining my friends at nightclubs, but the photosensitivity and fear of an episode made me uneasy. Peer pressure to drink or stay out late only deepened my struggles. These experiences sometimes left me feeling misunderstood, a sentiment that occasionally lingers to this day.

Professional and personal struggles

Entering the workforce posed another set of challenges. Medical tests for summer jobs and career opportunities became daunting hurdles. Some employers even demanded to see my medical history, leaving me feeling humiliated and vulnerable.

Yet, despite these setbacks, I pushed forward. My determination to live a normal life kept me moving through these dark moments. Today, I'm fortunate to have been seizure-free for 14 years. This stability has allowed me to work, exercise and enjoy life while finding ways to inspire others with epilepsy.

Embracing limits and counting blessings

Living with epilepsy has meant accepting certain limitations. Thrill-seeking activities like ziplining or scuba diving remain dreams for now. Even kayaking in the beautiful Mediterranean feels like a risk when I'm alone. Travelling, too, is often fraught with concerns. But I've learned to count my blessings.

With the unwavering support of my parents, who ensured I received the best care and encouraged me to come to terms with my condition, I've been able to live a meaningful life. I owe much of my strength to their love and patience, even if I don't thank them enough. I firmly believe that persons suffering from epilepsy should have a strong network of family members and friends that understand that they have a condition they cannot control and be there for them always.

Breaking the silence

I've realized the importance of raising awareness about epilepsy. Too many people suffer in silence, fearing the stigma that comes with this condition. It's time for that to change - epilepsy deserves more attention from public conversations to healthcare agendas. For those of us whose seizures are controlled, life can be rewarding and full of purpose. For others still struggling to manage their condition, there is hope. By speaking out, I aim to shatter the stigma and show the world that epilepsy doesn't have to define anyone.

Although Caritas Malta Epilepsy Association has done much to raise awareness over the years, I feel that people at large and policymakers do not talk enough about this condition, so it is more important to talk about it. Education and understanding are powerful tools in breaking down barriers and creating a more inclusive society.

Living with epilepsy has taught me resilience, patience and gratitude. My journey isn't without its challenges, but it's also filled with triumphs. Together, by sharing our stories and supporting one another, we can face this condition and emerge stronger. Remember, epilepsy may be part of your life, but it doesn't have to limit your dreams. With the right support and determination, almost anything is possible.

Caritas Epilepsy Malta  are full members of Malta Health Network www.maltahealthnetwork.org